Let PLHIV to lead: International Candlelight Memorial and World AIDS Day 2024, Tlokweng Botswana.

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 As we approach the 2024 National Candlelight Memorial on 9th June and World AIDS Day on 1st December, both taking place in Tlokweng, I find myself reflecting on my own journey with HIV—a diagnosis I received over 28 years ago. I've lived through the pre-treatment era and the AZT era, to the present day, where novel therapies like the Long-Acting Injectable regimen of Cabotegravir (CAB) and Rilpivirine are beginning to be rolled out.

Having witnessed firsthand the evolution of HIV care—from an era where treatment was only initiated once CD4 counts fell below 350 cells/mm³—I am astounded by the leaps in medical research and treatment accessibility. Today, people living with HIV (PLHIV) can lead long, healthy lives, a testament to the remarkable progress made.

However, as we celebrate these advancements, we must also address the emerging challenges faced by our community, particularly the ageing population of PLHIV. Initially, when treatment rollouts began, they targeted a younger demographic that has now aged. This shift necessitates robust HIV programmes tailored to the unique needs of older adults living with HIV.

Moreover, the U=U message is crucial. It asserts that individuals on effective treatment cannot transmit HIV to their sexual partners. This message not only combats stigma but also emphasises the transformative power of modern therapies. Both HIV and ageing and the U=U message should be central themes in our national commemorations. Neglecting these issues would mean overlooking critical aspects of the lives of PLHIV.

While PLHIV organisations are involved in the preparation of these events, it is concerning to see a lack of leadership roles occupied by PLHIV themselves. This dynamic needs to shift. PLHIV must be at the forefront, leading the charge not just in participation but in guiding the narrative and decision-making processes of these important events.

Central to empowering PLHIV in these roles is the UNAIDS-endorsed GIPA principle—Greater Involvement of People Living with HIV/AIDS. This principle asserts that PLHIV have a right to self-determination in the response to HIV/AIDS, and their involvement is critical in designing and implementing policies and programmes that affect their lives. By truly applying the GIPA principle, we can ensure that PLHIV not only contribute their valuable insights but also lead in shaping the responses that impact them directly.

As we gather to remember those we've lost and celebrate the strides we've made this Candlelight Memorial and World AIDS Day, let us also commit to empowering PLHIV with leadership opportunities. Only through direct involvement can we ensure that our response remains relevant and focused on the evolving needs of our community. It's time for PLHIV to lead—not just participate in—these vital commemorations.

Kennedy Mupeli.

Welcome to my blog dedicated to community engagement in HIV research. Here, we delve deep into the latest advancements and discussions surrounding HIV cure, treatment, prevention, and management of advanced HIV infection. My goal is to bridge the gap between complex scientific research and community understanding, ensuring that knowledge is accessible and actionable. Join me as I explore these critical topics, engage with community insights, and contribute to the ongoing fight against HIV.

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